9401 Wilshire Blvd., Suite 650
Beverly Hills, CA 90212
Email: facialparalysisfound@gmail.com

Research


Volunteers Needed for Research Study on “Understanding the Social Impact of Facial Paralysis”

A research project is underway to explore the social, professional and personal impactFaye Wachs of facial paralysis. The study is being led by Dr. Faye Wachs, Professor of Sociology at California State Polytechnic University – Pomona. She is currently recruiting persons who have been impacted by facial paralysis at some point in their life for a one-on-one interview (either in person, or by phone or internet). She is also interested in talking with family members of affected persons.

Dr. Wachs brings a personal connection to this project, as she herself has experienced synkinesis as a result of Bell’s palsy.

The summary of these interviews will be compiled into a future book-length manuscript on the subject. All names will be fictionalized for the purpose of this research project (unless requested otherwise)

If you are interested in participating, please contact Dr. Faye Wachs by e-mail at flwachs@cpp.edu, for more information.

Update from Dr. Faye Wachs – December 2016

“Over the last year and a half, I have spoken with over 100 people with facial paralysis, doctors, physical and occupational therapists, parents and siblings of people with Moebius syndrome, and a number of social and psychological issues recur. Isolation, depression, and anxiety are endemic, and mental health treatment should be part of the standard of care. The resources available to improve function, improve appearance, and reduce pain, are often uncovered, unavailable, and/or unaffordable. Coping strategies and options vary by region, income, race and family background. Gender plays a role in willingness to discuss experiences, the magnitude of the capital lost, and support sought. For those with acquired facial paralysis, and many with congenital, identity is disrupted in ways that cause significant impact to the ability to enjoy presentation of self. In some cases, facial paralysis can qualify as a disability. Raising awareness and providing accommodations, treatment and support is imperative so that those with facial paralysis can have an improved quality of life.”

Dr. Wachs is still interviewing a limited number of persons, so please contact her at the email listed above if you would like to take part.

Research on Genetic Causes of Facial Paralysis

Dr. Bryn Webb
The foundation is currently supporting a research project on Congenital Facial Paralysis disorders at the Icahn School of Medicine at Mount Sinai in New York City.

This study is being lead by Physician Scientist Dr. Bryn Webb, with the hope that her quest could provide more accurate diagnosis and, eventually, better treatment options for patients around the world.

To learn more about this research please click here.