Research

New Facial Paralysis Research Opportunity!!

Kathleen Bogart, PhD, Principal Investigator, Associate Professor of Psychology at Oregon State University, is seeking participants for a new research study.

To take part, persons simply need to complete a 10- minute survey that examines the social and emotional experiences of adults with a variety of types of facial paralysis to find similarities and differences across disorders.

To ensure that results reflect the diversity of the facial paralysis community, it is important that many people take part.

The only requirements are that participants:

-Be diagnosed with any kind of facial paralysis
-Be 18 years or older
-Be able to read and write in English

A summary of results will be available once the study is complete at: https://liberalarts.oregonstate.edu/sps/dsil

To help facial paralysis organizations, healthcare professionals, and researchers meet the needs of people with facial paralysis, results will be shared through publications and presentations.

Click here to complete the survey

Please help spread the word!


Research on Genetic Causes of Facial Paralysis

Dr. Bryn Webb, Assistant Professor at the Icahn School of Medicine at Mount Sinai in New York City, is enrolling patients with congenital facial weakness (facial weakness from birth) into her study in an attempt to identify genetic changes that lead to this condition.  For more information, please contact Dr. Webb directly at bryn.webb@mssm.edu or 212.241.1481. To participate, one would need to complete a consent form and provide a saliva sample. 

Click here to learn more details about Dr. Webb’s research study.


Research on Social and Professional Impact of Facial Paralysis

Dr. Faye Wachs, Professor of Sociology at California State Polytechnic  University – Pomona, is continuing her research into the professional and social impact of facial paralysis.   She has interviewed over 100 persons in the last two years, and is compiling her results into a book project.

Dr. Wachs brings a personal connection to this project, as she herself has experienced synkinesis as a result of Bell’s palsy.   Please read her most recent update below:

Update from Dr. Faye Wachs – March 2018

First, thanks to everyone who has participated and contributed to the research in various ways. Special thanks to the on-going support of the Facial Paralysis and Bell’s Palsy Foundation, and Cal Poly Pomona.  I am excited to report that the book proposal, and first few chapters are under review with an academic press, and I continue to work on the remaining chapters.  A separate paper about the experience is also in development.  I’ve also had the opportunity to participate in two webinars and have an upcoming podcast. 

Over one hundred interviews with people with facial paralysis, and interviews with professionals and family members, were completed, transcribed and analyzed, thanks to the willingness of so many to share their stories. 

I do still occasionally conduct an additional interview.  It’s always great to hear from a wider range of people, so please contact me if you have any questions or are willing to share your experience at flwachs@cpp.edu.  I would especially like to hear from young people, and men, but all stories are extremely valuable.  So often, the most poignant and subtle observations came directly from your words. 

And I am also excited to announced that in part because of this project, I was awarded the George P. Hart Award for Outstanding Faculty Leadership on my campus (Cal Poly Pomona). Thanks again for your ongoing support and I look forward to sharing more results with folks soon!

You may contact Dr. Faye Wachs by e-mail at flwachs@cpp.edu for more information on this ongoing project.